All Care.data articles
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NewsNHSX to oversee industry access to patient data
Matt Hancock’s new tech unit is assuming new controls of the sharing of NHS patient data with industry, after banning trusts from striking their own exclusive deals.
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Watchdog issues warning over government patient data sharing
The national data guardian has said the government’s latest plans to collect and share NHS patient data are unclear and public trust in the handling of their confidential records remains a “big issue”.
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Revealed: National plan to share 'rich detail of clinical encounters'
The NHS is planning to collect unprecedented “granular” details about patients’ care nationwide and make that information available to researchers, HSJ can reveal.
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Confused data policy risks 'almost irreparable' mistrust – NHS data boss
The head of the national safe haven for NHS patient data has warned a confused policy on data sharing risks sowing “deep and almost irreparable” public mistrust.
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Summary care record to be replaced, says NHS digital chief
The national summary care record system will be replaced by more detailed national “longitudinal” patient records for direct care, planning and research, Matthew Swindells has said.
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NHS surveys exempted from 1.6m patients' data sharing opt-outs
The preferences of 1.6m people who do not want to share their health data will not apply to patient experience surveys after concerns were raised it would undermine improvements in care.
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Poor uptake of new scheme to give patients control of confidential records
A new national system to give NHS patients control over sharing their confidential health records has been used by less than 5,000 people, leading to accusations that it has been poorly publicised.
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Expert Briefing
The Download: Theranos, could it happen in the NHS?
The fortnightly newsletter that unpacks system leaders’ priorities for digital technology and the impact they are having on delivering health services. Contact Ben Heather in confidence here .
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Expert Briefing
The Download: On the Hunt for elephants
The fortnightly newsletter that unpacks system leaders’ priorities for digital technology and the impact they are having on delivering health services. Contact Ben Heather in confidence here.
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News
150,000 NHS patients' records shared against their wishes
Tens of thousands of NHS patients have had their confidential health records shared for years against their wishes, after a major IT supplier failed to register their preferences.
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Two more digital 'exemplars' to get £7.5m
NHS England has picked two more regions to receive up to £7.5m to create detail health and care patient records.
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Patient data flow suspended amid 11th hour GDPR confusion
The release of millions of patients’ anonymous data was temporarily suspended last night, amid concerns that it may fall foul of new data regulations, HSJ has learned.
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NHS needs better return for sharing data with companies, says minister
New “rules of engagement” are needed to ensure the NHS benefits from sharing more patient data with industry, Lord O’Shaughnessy has told HSJ.
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New record sharing scheme to cover 14 million patients
NHS England has chosen three regions to develop detailed health and care records covering 14 million people, in the latest national push to collect and share patient data at scale.
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Think tanks try to help HEE amid 'real concerns' over major workforce strategy
The leading health think tanks are seeking to help Health Education England with the major workforce strategy it is developing, because of “real concerns” it won’t include a “robust look” at future staff supply and demand.
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MPs criticise 'entirely inappropriate' sharing of patient data with Home Office
MPs have warned the government is leaving the door open to widespread sharing of patients’ confidential details beyond the NHS without their consent or knowledge.
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Demand for NHS patient data more than doubles
Demand for NHS patient data has more than doubled in a year, as NHS Digital develops new ways to share and link information for planning and research.
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NHS must honour new single patient opt-out from May
Every NHS patient in England will be given the option to opt-out of sharing their health records for research or planning from May, coinciding with new European privacy rules.
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Exclusive: Government warned not to repeat Care.data mistakes
Dame Fiona Caldicott has warned the government that too many exceptions to the new patient data opt out scheme risk repeating the failings of Care.data.
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Swindells: Tech suppliers must sign up to data sharing or risk funding
Providers supplying IT services to the NHS will have their access to the health service curtailed if they do not agree to feed patient records into a new data sharing scheme.
