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As a parent of a child who suddenly developed serve ME at the age of 10 following a virus I would like to completely endorse Mary's remarks.

The difficulties we faced then were made worse by the lack of available information for doctors about ME .
Now we have NICE guidelines - but some doctors are still not using them and making sweeping assumptions about the illness which have no scientific basis.
My daughter was lucky - we eventually found ME specialists who could help us in supporting her - and she eventually made a complete recovery. Her pen pal with ME - who got no support - is now 16 years later a young woman with severe ME unable to lave her bed.